Committed to serving as the
connective center of education and
support for children and families
living with neurologic conditions.
@ CNFoundation@ cnf_neurologychildneurologyfoundationchildneurologyfoundation.org
• Transition of Care: Helping to support
youth, families, and child neurology teams
in the medical transition from pediatric to
adult health care systems
• Sudden Unexpected Death in
Epilepsy (SUDEP): Improving
communication between the child
neurology team and patients/families
when discussing difficult information
• Parent Coaches: Building a team
to provide virtual support for families
navigating the path of living with a
neurologic condition
• Virtual Disease Directory:
Enhancing an online portal that serves
as the premier source of disease
information, inspiring family stories,
and current resources related to child
neurological conditions
• IS Awareness: Coordinating a
collaborative advocacy model to enhance
Infantile Spasms Awareness #ISAW2017
• Respite Care Notebook: Developing
a user-friendly “notebook” reflective of
the comprehensive needs of the child
neurology community
• Partner Connections: Developing
Pathways – an eNewsletter featuring patient
educational information, advocacy events,
scholarships, and other opportunities of
interest to the child neurology community
• Grants and Scholarships: Awarding
research grants and summer scholarships
focused on child neurology
PROGRAM
PRIORITIES 2017
